News from Thursday, February 20, 2025
Articles
NHC’s Patient Experience Data Assets: Evidence-Based Tools to Improve Patient Health Outcomes
(2/18, Omar A. Escontrías, DrPH, MPH, National Health Council Blog) comments “...Once collected, PED be used in other processes like value assessments, health technology assessments, clinical trial endpoints, real-world evidence, and patient-centered health care delivery. Early patient engagement is critical and should be integrated in all aspects of PED collection for health care decision-making. Over the past several years, the National Health Council (NHC) has developed resources, evidence-based tools, and rubrics to support patient organizations, patient advocates, and their partners in promoting the use of PED in all areas of health care.” Full
Press Releases
Green Light for Groundbreaking Personalised Cancer Therapy That Reprogrammes Immune System
(2/20, NICE Press Release) “Final guidance published today recommends lisocabtagene maraleucel (also called liso-cel or Breyanzi and made by Bristol Myers Squibb) as an option for treating people with large B-cell lymphoma when their cancer has either not responded to initial treatment or returned within 12 months.” Full
New Life-Changing Treatment Option Recommended to Help Control Seizures for Type of Rare Epilepsy
(2/20, NICE Press Release) “In our final draft guidance published today (20 February) we've recommended fenfluramine (also called Fintepla and made by UCB) as an add-on to other antiseizure medicines for treating seizures associated with Lennox–Gastaut syndrome (LGS) for people 2 years and over.” Full
Journals
Harmonizing HTA Evidence Needs and Expectations: Challenges and Opportunities to Improve Evidence Generation, Ensure Access and Affordability
Sarah K. Emond, Wim G. Goettsch, Daniel A. Ollendorf
February 19, 2025, Clinical Pharmacology & Therapeutics
A Proposal to Involve People Living with Rare and Complex Conditions in the Development of Clinical Practice Guidelines
Anabel Granja-Dominguez, et al.
February 19, 2025, Patient Education and Counseling
Patient Education and Counseling
Spending Changes After Moving to Areas With Greater ACO Participation Among Nonattributed Medicare Beneficiaries
Yucheng Hou, PhD; Marisa Elena Domino, PhD; Valerie A. Lewis, PhD; et al
February 20, 2025, JAMA Network Open
Events
2025 V-BID Summit: 20 Years of Putting Patients First
March 12, 2025
12:00PM ET