NPC Chief Science Officer Jon Campbell will join a Biogen panel at the 2025 World Orphan Drug Congress, which is being held this year in Amsterdam. The session, titled “Challenge of Demonstrating Meaningfulness in the Context of Rare Disease” will address challenges in rare disease therapies as it pertains to HTA, evidence generation, and value assessment. Jon will be joined by Marcin Czech of the Institute of Mother and Child, Jennifer Farmer of Friedreich’s Ataxia Research Alliance (FARA), and moderator Chris Grimes-Crompton of Decisive Consulting, Ltd.
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